March 31, 2017

Archive

exactly the way she is- flashback post 2014

So many emotions flood your mind when you are pregnant with a child with spina bifida or omphaloceles or any birth defect.  If you were hoping to have more children, I can almost guarantee you will have that thought, “will I have another child with spina bifida?  Is it genetic? Is it me?  Is it something in my environment?  Did I take enough folic acid?  If I caused this, what did I do?” During the first year of Tough Guy’s...

my beautiful holland- flashback post 2012

  For any parent that has a child with special needs, I am sure you have heard the poem, “Welcome to Holland”, by Emily Perl Kingsley. When you’re going to have a baby, it’s like planning a fabulous vacation trip to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum, the Sistine Chapel, Gondolas. You may learn some handy phrases in Italian. It’s all very exciting. After several months of eager anticipation, the day...

hopes and dreams- flashback post 2012

Matthew 17:20, He replied, “Because you have so little faith.  I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, ‘Move from here to there’ and it will move.  Nothing will be impossible for you.” As a parent, I believe we are always striving for the “best” for our children.  The best looks different for different people and different families.  The best even looks different for each child within...