Flashback

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this is how we roll- flashback post 9.16.2012

 Even though I was a child development major, I sometimes forget that you can’t force a child into developing and doing things faster than they are ready.  I also forget that Tough Guy was born 5 1/2 weeks premature.  So really, when he turned 1, he was really only like that of a 10 1/2 month old. We got Tough Guy his first wheelchair when he was pretty little because we want him to have the opportunity to grow and...

the dreaded question- flashback 2015

It was only time before I heard the dreaded question come out of my curious three year old’s mouth, “when will I walk without my wheels mama?” He’s usually very proud of his wheels, and he’s mentioned things about not being about to walk before, but this time felt different. He’s noticing he is different. He’s noticing his limitations. He wants to do something that is just physically not possible. Dear Tough Guy, If I could reach to the moon...

exactly the way she is- flashback post 2014

So many emotions flood your mind when you are pregnant with a child with spina bifida or omphaloceles or any birth defect.  If you were hoping to have more children, I can almost guarantee you will have that thought, “will I have another child with spina bifida?  Is it genetic? Is it me?  Is it something in my environment?  Did I take enough folic acid?  If I caused this, what did I do?” During the first year of Tough Guy’s...

my beautiful holland- flashback post 2012

  For any parent that has a child with special needs, I am sure you have heard the poem, “Welcome to Holland”, by Emily Perl Kingsley. When you’re going to have a baby, it’s like planning a fabulous vacation trip to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum, the Sistine Chapel, Gondolas. You may learn some handy phrases in Italian. It’s all very exciting. After several months of eager anticipation, the day...

hopes and dreams- flashback post 2012

Matthew 17:20, He replied, “Because you have so little faith.  I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, ‘Move from here to there’ and it will move.  Nothing will be impossible for you.” As a parent, I believe we are always striving for the “best” for our children.  The best looks different for different people and different families.  The best even looks different for each child within...