omphalocele

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allow the miracle- flashback post 10.7.12

This morning, I got a text from my best friend, Kate.  She sent me a message showing a flashback from Facebook, “Thinking of sweet little Tough Guy today.  Sending positive thoughts his way!” I completely forgot that five years ago today, Tough Guy had the longest surgery of his little life.  He has had many procedures and several big surgeries, but this surgery was his longest surgery, at 12 hours long.  It was very complicated and he was only 15...

my beautiful holland- flashback post 2012

  For any parent that has a child with special needs, I am sure you have heard the poem, “Welcome to Holland”, by Emily Perl Kingsley. When you’re going to have a baby, it’s like planning a fabulous vacation trip to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum, the Sistine Chapel, Gondolas. You may learn some handy phrases in Italian. It’s all very exciting. After several months of eager anticipation, the day...

hopes and dreams- flashback post 2012

Matthew 17:20, He replied, “Because you have so little faith.  I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, ‘Move from here to there’ and it will move.  Nothing will be impossible for you.” As a parent, I believe we are always striving for the “best” for our children.  The best looks different for different people and different families.  The best even looks different for each child within...