hopes and dreams- flashback post 2012

March 31, 2017

Matthew 17:20, He replied, “Because you have so little faith.  I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, ‘Move from here to there’ and it will move.  Nothing will be impossible for you.”

As a parent, I believe we are always striving for the “best” for our children.  The best looks different for different people and different families.  The best even looks different for each child within a family.  We all want “the best”.

So ever since I heard of Tough Guy’s spinal problem and learned that he would most likely not walk, I continued to dream of the best.  What would be the best solution?  A wheelchair wouldn’t cut it.  He would walk.

Well, knowing that Tough Guy’s legs don’t move and he doesn’t cry when he gets shots in them, I am pretty sure I could confidently say, he won’t walk.  Medically, it would be a very unlikely happening.  Some may say impossible.

But, as impossible as it appears, and as crazy as it seems, I believe that one day, yes, one day, he will walk.

I have done lots of research as I am sure most parents do when they are searching for the best.  I have read about stem cell research and awesome new devices like the exobionics exoskeleton. http://eksobionics.com/  or the rewalk http://rewalk.com/

Recent Noble Peace Prize winners have amazing research in adult stem cell advances  http://www.cnn.com/2012/10/08/world/europe/sweden-nobel-prize-medicine/index.html  Good things are happening.  There are very smart people out there doing really smart things.

We are very fortunate to have some of the best doctors in the world for our son.  We are blessed that not only are they pretty darn smart and good at what they do, but they are also very understanding and hopeful.  It’s not everyday you find that.  I remember even before Isaac was born we spoke with one of his doctors.  After telling us about Isaac’s challenges, he reminded us that this is now. In 10, 15, 20 years, technology will change.  We can’t predict what his options will be then.

Tonight, I was talking with Isaac’s neurosurgeon and I asked him what he could tell me about non-embryonic stem cell treatment for kids with spina bifida.  While there are stem cell treatments available for children with spina bifida in other countries, there is not a lot of regulation and the results are minimal.  But, that is today.  He shared  information about how doctors and researchers are finding our more about how our own stem cells can work to rebuild organs and tissue.  Despite the severity of Tough Guy’s defect, he gave hope that Tough Guy could reap benefits from these advances in his lifetime.

Tonight, I know that I am at peace with his wheelchair.  He will get around just fine with it and he will be awesome.  Whether he uses a chair or his legs or a robotic leg mover, the world is at his fingertips.  But I also know that the world is changing so rapidly and many people are working hard to find ways to help everyone live a full life and achieve dreams they never thought possible.

Tonight, I am reminded of the mustard seed and filled with hope.

                                  There is no dream too big and no dreamer too small.

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